Welcome to the HD conversation!
I look forward to sharing what I’ve learned from my conversations with the HD community. I hope to hear from you, so please don’t hesitate to reach out. To receive blog posts and other news in your inbox please sign up here.
Hope on hold: FDA decision detrimentally impacts HD families
Now that the holidays are over, it’s time to restart the conversation around how Huntington’s families are impacted by the FDA’s decision to pause accelerated approval for the first-ever therapy to show that disease progression can be safely slowed.
Welcome to Livable Lives!
Livable Lives is in the hands of readers across the globe! Christy shares what she learned from her conversations with the HD community.
The Importance of Sharing our Stories
Why I chose to share my HD story and what I’ve learned from hearing others’ stories from around the world.