Media & Events
I am available for speaking opportunities and interviews. Please reach out!
Upcoming Events
November 8, 2025 - Help4HD International Virtual HIPE
Christy and Lauren Holder will share preliminary results from the HD-PACE Clinical Patient Experience Survey.
November 14, 2025 - Wayne State University, Genetic Counseling Grand Rounds (Virtual), Detroit, MI
Christy will give genetic counseling students an inside peek into what it means to belong to an HD family by sharing her experience with being at risk and going through the genetic testing process. She’ll also share what she learned from others while writing Livable Lives.
Past Media & Events
Carlos Briceno interviewed Christy for his weekly blog, “A Family Tradition.” Part 2 focuses on what moved Christy when she interviewed the book’s storytellers, why it’s important for family and health professionals to understand HD, and what she’s learned about hope.
Carlos Briceno interviewed Christy for his weekly blog, “A Family Tradition.” Part 1 focuses on what made Christy feel ready to share her family’s story, creating a safe space for storytellers to share their stories, how the term “livable life” has impacted her own story, and the uncertainty and fear that come with belonging to an HD family.
September 20, 2025 - HDSA University of Iowa COE Education Day, Coralville, IA
Christy spoke about the uncertainty that HD brings into our lives when we’re at risk, and even after genetic testing.
July 19, 2025 - Help4HD International HIPE, Denver, CO
Christy will speak about the experience of writing Livable Lives.
May 20, 2025 - Why Sharing Our HD Stories is Crucial, HD News
Huntington’s Disease News Community Spotlight series for HD Awareness Month.
April 4 and 5, 2025 - HD Reach Education Day, Cary, NC
Christy shared Livable Lives at an evening storytelling event and participated in a panel on testing negative.
March 14-16, 2025 - HDYO Congress, Prague, Czech Republic
Christy met with HD community members at her table in the exhibit hall.
March 6, 2025 - Help4HD Live! Podcast
Christy discussed advocacy and HD-PACE with Lauren Holder, patient advocate, producer and host of Help4HD Live!, and host of the Dying to Live podcast.
February 7, 2025 - Southeast Huntington’s Disease Symposium, Nashville, TN
Christy moderated a panel on patient engagement that included Erika Boulavsky (HD Reach), Jamie Holloway (Help4HD), Jenna Heilman (HDYO), and MaryAnn Emerick (HDSA’s National Youth Alliance).
January 7, 2025, and February 4, 2025 - HD Reach Book Club
The HD Reach Book Club read and discussed Livable Lives.
December 5, 2024 - Huntington’s Disease Youth Organization
Christy spoke with Jenna Heilman, executive directory of HDYO, to discuss the launch of Livable Lives.
November 30, 2024 - Meet the Author, Shoreline, WA
In-person event to share Livable Lives with Seattle-area readers.
November 24, 2024 - Livable Lives Press Release (HDYO)
Press release announcing the launch of Livable Lives.
February 22, 2024 - Huntington’s Disease Youth Organization
Christy spoke with Jenna Heilman, executive director of HDYO, to talk about the impact of sharing our HD stories.
December 21, 2023 - Help4HD Live! Podcast
Christy discussed Livable Lives with Lauren Holder, patient advocate, producer and host of Help4HD Live!, and host of the Dying to Live podcast.
November 2023 - European Huntington’s Disease Network (EHDN) News Issue 50
Livable Lives was mentioned in EHDN’s newsletter in an article titled: Huntington’s Disease Heroes: Inspiring Stories of Resilience from the HD Community.
October 13-15, 2023 - Help4HD International, San Diego, CA
Christy hosted a table at Help4HD International’s annual symposium to share Livable Lives with the HD community.
September 7, 2023 - HelpCureHD Educational Forum, Houston, TX
Christy hosted a table at HelpCureHD’s inaugural educational forum to introduce Livable Lives to the HD community.